“I want people to know that not speaking is not the same as not thinking; that poor fine motor is not the same as not thinking; that impulsive actions are different than not understanding right from wrong; that poor facial affect is not the same as not having feelings; that boring people to death is denying them life, liberty and the pursuit of happiness” Ido Kedar, [p. 34]
This quote really struck me. Autistics are often deprived of consistent forms of communication, and often treated with powerfully sedating medications because of “behaviour,” which can actually be frustration at not being able to communicate, and/or apraxic motor skills deficits. Apraxia can turn meaningful intentions into disorganised and chaotic involuntary movements. It does not reflect on the person’s capability or worth. In Ido’s essay, he clearly shows frustration at not having his innate abilities respected; it would be horrific if he were treated as if he lacked those abilities, for his entire life. Perhaps the diagnostic evaluations for communication disabilities should be redesigned?
Apraxia is something I also have. It causes me to be quite wild and crazy in my movements and actions, much like author Larry Bissonnette, who after finding a communication avenue writes, “It was Larry the artist now rather than Larry the wild and crazy autistic guy” [p. 57]. Sadly, I have been denied the help I need to integrate my sensory and motor systems. Similarly, Emma Zurcher Long describes herself as laughing out loud when someone is sad, which leads to people thinking she has no empathy. This is not the case. She feels empathy very strongly, and she emotively describes this. But we autistics may appear to have inappropriate emotions in response to emotive situations, because apraxia can cause us to not act in a way we intend to. But we relate to emotions. We feel them.
Book Review: Communication Alternatives In Autism
You don’t have to look far to find derogatory descriptions of the communication of autistic people. Terms such as ‘disorder’, ‘impairment’, ‘deficit’ and ‘dysfunction’ abound in the research literature which, when you drill down into it, offers multitudes of negative conceptualisations of the ways that autistic people do, or don’t express themselves. In simple terms, autistic people are considered impaired whether they are speaking, or not speaking, for the words they choose, or don’t choose, for talking too quickly, or too slowly, for doing so at the wrong time, in the wrong way, or in the wrong place. Indeed, as I wrote in 2018, when I explored the intersection of autistic communication with noise and silence in schools, autistic people are simply considered to be making ‘the wrong kind of noise’.
Time to rethink autism and communication
Have you ever heard a seemingly successful and ‘high-functioning’ Aspie try to explain how exhausting a day at work can be, or say that Asperger’s ‘ruined’ their career? In this article, I will provide just one detailed [real-life] scenario along with a commentary and analysis from an objective standpoint. Aspie’s and neurotypicals (NTs) both can benefit from having a deeper look inside to gain an understanding of what’s happening on both ends.
Aspie Mishaps and Misunderstandings Examined: At Work – “Do I really have to be ‘that’ literal and direct with you?”
Countless micro transactions take place on a daily basis in which invaluable commodities are exchanged. Good will is perhaps one of the most important commodities of all. In so very many contexts good will can be converted (somewhere along the line) into hard cash. Social fluency (of the dominant kind) creates the conditions for this powerful ‘alchemy’.
Without the means to wield this power autistic people can fall prey to a form of ‘social’ poverty which can create a devastating impact on a person over a lifetime, from infancy onwards, from the point at which a child’s babbling is labelled ‘not functional’.
Giving is getting: the social ‘cure’ for autism (the power dynamics exposed).